Common data elements for epilepsy mobile health systems
Name
nihms948409.pdf
Description
Accepted version
Size
70.17 KB
Format
Adobe PDF
Checksum (MD5)
86a84fa832352a3f818af1d38b5cf466
Author(s)
Goldenholz, Daniel M.
Moss, Robert
Jost, David A.
Crone, Nathan E.
Krauss, Gregory
Picard, Rosalind W.
Caborni, Chiara
Cavazos, Jose E.
Hixson, John
Loddenkemper, Tobias
Date Issued
March 31, 2018
Journal
Epilepsia
Publisher
Wiley
Citation
Goldenholz, Daniel M., et al. “Common Data Elements for Epilepsy Mobile Health Systems.” Epilepsia 59, 5, (May 2018): 1020–26.
Version
Author's final manuscript
Abstract
Objective: Common data elements (CDEs) are currently unavailable for mobile health (mHealth) in epilepsy devices and related applications. As a result, despite expansive growth of new digital services for people with epilepsy, information collected is often not interoperable or directly comparable. We aim to correct this problem through development of industry-wide standards for mHealth epilepsy data. Methods: Using a group of stakeholders from industry, academia, and patient advocacy organizations, we offer a consensus statement for the elements that may facilitate communication among different systems. Results: A consensus statement is presented for epilepsy mHealth CDEs. Significance: Although it is not exclusive, we believe that the use of a minimal common information denominator, specifically these CDEs, will promote innovation, accelerate scientific discovery, and enhance clinical usage across applications and devices in the epilepsy mHealth space. As a consequence, people with epilepsy will have greater flexibility and ultimately more powerful tools to improve their lives.
MIT Department
Program in Media Arts and Sciences (Massachusetts Institute of Technology)
Terms of Use
Creative Commons Attribution-Noncommercial-Share Alike
Persistent DSpace Link
DOI of Published Version
https://doi.org/10.1111/epi.14066
