Innovation by patients with rare diseases and chronic needs
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13023_2015_Article_257.pdf
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395.1 KB
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6da3a324353f610aaff84da2eb8066ff
Author(s)
Oliveira, Pedro
Zejnilovic, Leid
Canhao, Helena
von Hippel, Eric A.
Date Issued
April 2015
Journal
Orphanet Journal of Rare Diseases
Publisher
BioMed Central
Citation
Oliveira, Pedro, Leid Zejnilovic, Helena Canhao, and Eric von Hippel. “Innovation by Patients with Rare Diseases and Chronic Needs.” Orphanet Journal of Rare Diseases 10, no. 1 (April 9, 2015).
Version
Final published version
Abstract
We provide the first empirical exploration of disease-related innovation by patients and their caregivers. Our aims were to explore to what degree do patients develop innovative solutions; how many of these are unique developments; and do these solutions have positive perceived impact on the patients’ overall quality of life? In addition, we explored the factors associated with patient innovation development, and sharing of the solutions that the patients developed.
MIT Department
Sloan School of Management
Persistent DSpace Link
DOI of Published Version
https://doi.org/10.1186/s13023-015-0257-2
