dc.contributor.author | Goldenholz, Daniel M. | |
dc.contributor.author | Moss, Robert | |
dc.contributor.author | Jost, David A. | |
dc.contributor.author | Crone, Nathan E. | |
dc.contributor.author | Krauss, Gregory | |
dc.contributor.author | Picard, Rosalind W. | |
dc.contributor.author | Caborni, Chiara | |
dc.contributor.author | Cavazos, Jose E. | |
dc.contributor.author | Hixson, John | |
dc.contributor.author | Loddenkemper, Tobias | |
dc.contributor.author | Salazar, Tracy Dixon | |
dc.contributor.author | Lubbers, Laura | |
dc.contributor.author | Harte‐Hargrove, Lauren C. | |
dc.contributor.author | Whittemore, Vicky | |
dc.contributor.author | Duun‐Henriksen, Jonas | |
dc.contributor.author | Dolan, Eric | |
dc.contributor.author | Kasturia, Nitish | |
dc.contributor.author | Oberemk, Mark | |
dc.contributor.author | Cook, Mark J. | |
dc.contributor.author | Lehmkuhle, Mark | |
dc.contributor.author | Sperling, Michael R. | |
dc.contributor.author | Shafer, Patricia O. | |
dc.date.accessioned | 2020-05-11T20:46:01Z | |
dc.date.available | 2020-05-11T20:46:01Z | |
dc.date.issued | 2018-03-31 | |
dc.date.submitted | 2018-02 | |
dc.identifier.issn | 0013-9580 | |
dc.identifier.issn | 1528-1167 | |
dc.identifier.uri | https://hdl.handle.net/1721.1/125167 | |
dc.description.abstract | Objective: Common data elements (CDEs) are currently unavailable for mobile health (mHealth) in epilepsy devices and related applications. As a result, despite expansive growth of new digital services for people with epilepsy, information collected is often not interoperable or directly comparable. We aim to correct this problem through development of industry-wide standards for mHealth epilepsy data. Methods: Using a group of stakeholders from industry, academia, and patient advocacy organizations, we offer a consensus statement for the elements that may facilitate communication among different systems. Results: A consensus statement is presented for epilepsy mHealth CDEs. Significance: Although it is not exclusive, we believe that the use of a minimal common information denominator, specifically these CDEs, will promote innovation, accelerate scientific discovery, and enhance clinical usage across applications and devices in the epilepsy mHealth space. As a consequence, people with epilepsy will have greater flexibility and ultimately more powerful tools to improve their lives. | en_US |
dc.language.iso | en | |
dc.publisher | Wiley | en_US |
dc.relation.isversionof | http://dx.doi.org/10.1111/epi.14066 | en_US |
dc.rights | Creative Commons Attribution-Noncommercial-Share Alike | en_US |
dc.rights.uri | http://creativecommons.org/licenses/by-nc-sa/4.0/ | en_US |
dc.source | PMC | en_US |
dc.title | Common data elements for epilepsy mobile health systems | en_US |
dc.type | Article | en_US |
dc.identifier.citation | Goldenholz, Daniel M., et al. “Common Data Elements for Epilepsy Mobile Health Systems.” Epilepsia 59, 5, (May 2018): 1020–26. | en_US |
dc.contributor.department | Program in Media Arts and Sciences (Massachusetts Institute of Technology) | en_US |
dc.relation.journal | Epilepsia | en_US |
dc.eprint.version | Author's final manuscript | en_US |
dc.type.uri | http://purl.org/eprint/type/JournalArticle | en_US |
eprint.status | http://purl.org/eprint/status/PeerReviewed | en_US |
dc.date.updated | 2019-07-31T18:37:58Z | |
dspace.date.submission | 2019-07-31T18:37:59Z | |
mit.journal.volume | 59 | en_US |
mit.journal.issue | 5 | en_US |
mit.metadata.status | Complete | |