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dc.contributor.authorRanganathan, Sruthi
dc.contributor.authorTomar, Vivek
dc.contributor.authorChino, Fumiko
dc.contributor.authorJain, Bhav
dc.contributor.authorPatel, Tej A.
dc.contributor.authorDee, Edward C.
dc.contributor.authorMathew, Aju
dc.date.accessioned2023-06-26T17:09:31Z
dc.date.available2023-06-26T17:09:31Z
dc.date.issued2023-06-24
dc.identifier.urihttps://hdl.handle.net/1721.1/150939
dc.description.abstractAbstract In India, approximately 1.4 million new cases of cancer are recorded annually, with 26.7 million people living with cancer in 2021. Providing care for family members with cancer impacts caregivers’ health and financial resources. Effects on caregivers’ health and financial resources, understood as family and caregiver “financial toxicity” of cancer, are important to explore in the Indian context, where family members often serve as caregivers, in light of cultural attitudes towards family. This is reinforced by other structural issues such as grave disparities in socioeconomic status, barriers in access to care, and limited access to supportive care services for many patients. Effects on family caregivers’ financial resources are particularly prevalent in India given the increased dependency on out-of-pocket financing for healthcare, disparate access to insurance coverage, and limitations in public expenditure on healthcare. In this paper, we explore family and caregiver financial toxicity of cancer in the Indian context, highlighting the multiple psychosocial aspects through which these factors may play out. We suggest steps forward, including future directions in (1) health services research, (2) community-level interventions, and (3) policy changes. We underscore that multidisciplinary and multi-sectoral efforts are needed to study and address family and caregiver financial toxicity in India.en_US
dc.publisherSpringer Berlin Heidelbergen_US
dc.relation.isversionofhttps://doi.org/10.1007/s00520-023-07886-1en_US
dc.rightsArticle is made available in accordance with the publisher's policy and may be subject to US copyright law. Please refer to the publisher's site for terms of use.en_US
dc.sourceSpringer Berlin Heidelbergen_US
dc.titleA burden shared: the financial, psychological, and health-related consequences borne by family members and caregivers of people with cancer in Indiaen_US
dc.typeArticleen_US
dc.identifier.citationSupportive Care in Cancer. 2023 Jun 24;31(7):420en_US
dc.eprint.versionAuthor's final manuscripten_US
dc.type.urihttp://purl.org/eprint/type/JournalArticleen_US
eprint.statushttp://purl.org/eprint/status/PeerRevieweden_US
dc.date.updated2023-06-25T03:10:40Z
dc.language.rfc3066en
dc.rights.holderThe Author(s), under exclusive licence to Springer-Verlag GmbH Germany, part of Springer Nature
dspace.embargo.termsY
dspace.date.submission2023-06-25T03:10:40Z
mit.licensePUBLISHER_POLICY
mit.metadata.statusAuthority Work and Publication Information Neededen_US


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